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Friends of

Tag: Manchester childrens cancer research

Proton Beam Therapy research

Friends of Rosie is funding a £70,000 project investigating the biology of protons used in Proton Beam Therapy (PBT) to treat sarcomas in children. We recently met with lead researcher, Dr Amy Chadwick, and Research Associate, Dr Emma Biglin, to find out more about this pioneering research. Sarcomas are cancers that develop in bone and […]

Sarcoma awareness month

Sarcoma Awareness Month

July is #SarcomaAwarenessMonth. Sarcomas are uncommon cancers that can affect any part of your body. A key symptom of sarcoma is a lump that gets bigger quickly.   This #CharityTuesday, as we near the end of the month, we wanted to share what we’ve been doing to help children with sarcomas. Over the past three […]

New charity partner of Exchange Chambers

childhood cancer awareness month

Friends of Rosie has been selected as the charity partner for Exchange Chambers for the next two years. Exchange Chambers is an award-winning set of Barristers’ Chambers with 200 members and offices in Manchester, Liverpool and Leeds. The CEO at Exchange Chambers, Jonathan l’Anson, said, “Planning is already underway for several fundraising events, including a […]

Friends of Rosie to host international childhood cancer workshop

childhood cancer workshop

We are proud to tell you about our upcoming international childhood cancer research workshop. This important workshop will bring together 40 of the world’s top researchers and clinicians to discuss how better to target treatments for children with cancer. Childhood cancer is the biggest killer of children under 14 in the western world, yet it […]

Reducing the risk of facial asymmetry after radiotherapy

facial asymmetry

In 2020, we kickstarted new research looking into ways to decrease the risk of facial asymmetry in children with cancers in the head and neck. Your donations make this research happen. So, to keep you updated on how your donations are being used, we recently caught up with the project team at The University of Manchester […]

Our latest research project is underway

facial disfiguration

Covid won’t stop us in our fight for children with cancer! We’re delighted that our newest childhood cancer research project has now started, following some delays due to Covid restrictions. We caught up with the research team at The University of Manchester to find out more about them and their priorities for the first few […]

eBay’s Big Charity Sell

eBay's Big Charity Sell

Declutter, donate, and nominate a friend a do the same via eBay’s Big Charity Sell. We are calling for our supporters to sell your unwanted items on eBay and donate up to 100% of the proceeds to Friends of Rosie, helping to raise vital funds for children with cancer, as well as reducing waste. Charities […]

Elizabeth’s cold shower challenge

lockdown fundraising

A massive well done to eight year old, Elizabeth, who has raised £350 with her cold shower challenge for children’s cancer research. Fantastic effort Elizabeth and a huge thank you to everyone who donated. We’re facing tough times ahead as a charity and you’ve helped ensure children with cancer aren’t forgotten. If Elizabeth has inspired […]

New research to help prevent facial disfiguration in children with cancer

facial asymmetry

Friends of Rosie is funding new research into ways to decrease the risk of facial disfiguration in children with cancers in the head and neck. Says Professor John Hickman, Chair of Friends of Rosie’s Scientific Advisory Board, “As children’s bones and tissues are still growing, current treatments for facial cancers in children can lead to […]

What do you want to do when you grow up?

When you grow up

For most children when asked, ‘What do you want to do when you grow up?’, the list of possibilities is endless. For children diagnosed with cancer, their aspirations are no less great and why should they be? This is the question Friends of Rosie posed to the children attending this year’s Ward 84 summer party. […]

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Nancy Dykes

Nancy Dykes

Nancy, 11, was diagnosed with rhabdomyosarcoma when she was just 2 years old. She was treated with Proton Beam Therapy (PBT) in Germany but unfortunately relapsed less than a year later. The family were then sent to Germany for a second round of PBT. Although treatment helped to cure Nancy’s cancer, she has been left with lots of lasting effects which will require ongoing treatment throughout her life. Here Nancy and her mum, Antonia, share their story in the hope it will help others, raise awareness, and raise more money for children’s cancer research.

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Prof John Hickman

Prof John Hickman

Why I am a Trustee of CCRF
 
I am a relative of the Larkin family and knew Rosie Larkin ( Friends of Rosie, now CCRF) when she had and then died of neuroblastoma, aged six. At that time, I was a scientist and professor at Manchester University, actively working on the problem of why some cancers do not die despite intensive and toxic therapies.  Seeing Rosie during her unsuccessful therapy and then attending her funeral, besides being emotional, drove me to double down on my own research as well as to support the Charity as best I could as a cancer researcher. I spent over a decade as the Chairman of the Scientific Advisory Board of the CCRF, when the Board moulded policies to ensure that funds raised for research into childhood cancers were distributed only to clinicians and researchers who had the brightest ideas that could impact of cancer medicine for children.
 
My role on the Board
 
As a Trustee,  I hope that my many decades of experience in cancer research and medicine can help the CCRF determine where best the funds that are raised can be invested in cutting edge research and medicine. I am also keen that the CCRF brings together UK and international experts in science and cancer medicine to brainstorm on how best to advance the treatment of childhood cancers.
 
My Background
 
I was a Professor of Pharmacology at Manchester University, working on drug resistance in cancer. I then moved to Paris, where I still live, to head cancer drug discovery at a French pharmaceutical company (Servier). I then headed an EU consortium for six years that brought together researchers from the pharmaceutical industry, universities and biotechnology companies, from all over Europe and the UK, to improve cancer drug discovery. I continue to be active in cancer health policy, publishing in the medical literature.
Katrina

Katrina London

Why I am a Trustee of CCRF

I have spent my professional career representing individuals and families affected by the devastating asbestos-related cancer, mesothelioma, which has no cure and for which there are only a limited number of palliative treatments available on the NHS.

I joined CCRF because I wanted to bring my understanding of the need to raise awareness of less well known cancers and passion for the need to secure improved funding for research to children facing a cancer diagnosis.

My role on the Board

I am responsible for oversight of our collaboration agreements with other charities to co-fund research into cures and treatments for childhood cancers. I also manage our challenge events and help with community fundraising. 

My Background

I am a Senior Associate at Irwin Mitchell LLP and specialise in Asbestos Disease Litigation, acting on behalf of victims of asbestos related diseases and their families.  Over the years, I have undertaken a number of fundraising challenges to raise money for cancer research, including a 1000 mile cycle ride from Glasgow to Southampton.   

Carla

Carla Nuttall

Why I’m a Trustee of CCRF
 
I became a trustee of the Children’s Cancer Research Fund because I believe every child deserves the chance to grow up healthy and with everything to look forward to in life. Like many people, I’ve seen the impact cancer can have on families and I wanted to do something that could make a real difference. This started through my work as an ambassador for Cyclists Fighting Cancer, which supported young people and their families in finding strength, confidence, and joy through movement.
 
That experience shaped my understanding of the challenges families face and the importance of community-led support – but crucially, the clear need for that to go hand-in-hand with targeted research and long-term solutions.
 
This is why I’m so passionate about the work CCRF does and proud to contribute to a cause that gives children and their families, the greatest chance of living a life without limits.
 
My Role on the Board
 
I support CCRF’s mission by bringing my experience in brand, marketing, and communications to the board. My focus is on helping CCRF tell its story in a way that resonates with people – whether that’s families, researchers, donors, or the wider public. I work alongside an incredible team to strengthen CCRF’s voice, build trust, and grow awareness so that more children and families can benefit from the breakthroughs we’re helping to fund.
 
My Background
 
I’m the Executive Director of Corporate Affairs and Marketing for The Growth Company, a social enterprise dedicated to helping people, businesses, and places to thrive through its market-leading insight, employment, skills and business support.
My passion is to help the organisations I work with to communicate with clarity, purpose, and integrity. That’s why I’ve spent my career in strategic communications supporting organisations that want to make a positive difference – CCRF could not fit my sense of purpose any better.