We are members are the Association of Medical Research Charities (AMRC) and part of the Children and Young People’s Cancer Coalition (CYPCC).
The strength and experience of our Scientific Advisory Board members provides the Children’s Cancer Research Fund with a strong and trusted insight into current scientific priorities in childhood cancer research.
Our Board has links with many other research organisations and charities. This helps to ensure that we are effective in our research funding decision-making; we don’t duplicate efforts; and we prioritise on the right research areas.
The Children and Young People Cancer Coalition (CYPCC) is a CEO-led charity coalition of 14 founding organisations. It aims to make things better for children and young people with cancer through speaking up on issues that matter to them, having a unified voice and supporting each other as charities and CEOs.
The Children’s Cancer Research Fund is an associate member of the CYPCC.
We have joined forces with the following charities on specific research projects. If you’re a charity interested in collaborating with us to jointly fund a research project, please get in touch at info@childrenscancerresearchfund.co.uk or call 07887 932293
Neuroblastoma UK is a national charity dedicated to finding a cure for neuroblastoma.
We partnered with Neuroblastoma UK to fund new research to improve treatment for children with advanced neuroblastoma.
Research collaboration with Neuroblastoma UK News – Friends of Rosie
Megan’s Rose of Hope support young people with cancer aged 11-25, and their families. They raise awareness, provide information and build a community of support.
We joined forces with another like-minded charity, Megan’s Rose of Hope, to fund research into the use of a revolutionary new blood test to diagnose Ewing Sarcoma, a rare type of bone cancer. In 1 in 4 children or young people with Ewing Sarcoma there is little chance of survival because the cancer has already spread by the time it is detected with present methods.
Could a blood test diagnose Ewing Sarcoma? News – Friends of Rosie
Hannah’s Willberry Wonder Pony Charity was established by talented horse rider, Hannah Francis, following her diagnosis with the aggressive form of bone cancer in 2015. A major part of Hannah’s dream for her charity was to support vital research into osteosarcoma, which usually develops in growing bones. Hannah established her charity in March 2016 before tragically losing her life later that year at the age of just 18 years old.
Osteosarcoma project secures further funding News – Friends of Rosie
The Bradley Lowery Foundation aims to support families who are fundraising for treatment or equipment, which is not readily available or covered by the NHS. This includes all illnesses and conditions. The foundation also: supports research into neuroblastoma and childhood cancers.
We partnered with The Bradley Lowery Foundation to fund new research into the detection and treatment of a rare type of childhood bone cancer, called Ewing Sarcoma.
Joseph’s Smile provides grants to children to access lifesaving or life-changing medical treatment or equipment that’s currently not available to them on the NHS.
The Children’s Cancer Research Fund partnered with Joseph’s Smile to host an international research symposium focused on the treatment of neuroblastoma.
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Nancy, 11, was diagnosed with rhabdomyosarcoma when she was just 2 years old. She was treated with Proton Beam Therapy (PBT) in Germany but unfortunately relapsed less than a year later. The family were then sent to Germany for a second round of PBT. Although treatment helped to cure Nancy’s cancer, she has been left with lots of lasting effects which will require ongoing treatment throughout her life. Here Nancy and her mum, Antonia, share their story in the hope it will help others, raise awareness, and raise more money for children’s cancer research.
Why I am a Trustee of CCRF
I have spent my professional career representing individuals and families affected by the devastating asbestos-related cancer, mesothelioma, which has no cure and for which there are only a limited number of palliative treatments available on the NHS.
I joined CCRF because I wanted to bring my understanding of the need to raise awareness of less well known cancers and passion for the need to secure improved funding for research to children facing a cancer diagnosis.
My role on the Board
I am responsible for oversight of our collaboration agreements with other charities to co-fund research into cures and treatments for childhood cancers. I also manage our challenge events and help with community fundraising.
My Background
I am a Senior Associate at Irwin Mitchell LLP and specialise in Asbestos Disease Litigation, acting on behalf of victims of asbestos related diseases and their families. Over the years, I have undertaken a number of fundraising challenges to raise money for cancer research, including a 1000 mile cycle ride from Glasgow to Southampton.
