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Tag: childhood cancer

Jude’s Story

Jude Anderton

Jude Anderton was 11 years old when he was diagnosed with bone cancer. He went from a happy, highly active boy to being desperately ill in such a short space of time. His mum, Helen, shares his story to help raise awareness for childhood bone cancer and the vital need for more research: “I remember […]

Scientists discover way to stop spread of devastating bone cancer in children

Research, co-funded by Friends of Rosie, could save more lives and lead to kinder treatments for children with bone cancer. Researchers at The University of Manchester and the University of East Anglia and have made what may be the most significant step forward for children with one of the most common childhood cancers in 40 […]

New research to help prevent facial disfiguration in children with cancer

facial asymmetry

Friends of Rosie is funding new research into ways to decrease the risk of facial disfiguration in children with cancers in the head and neck. Says Professor John Hickman, Chair of Friends of Rosie’s Scientific Advisory Board, “As children’s bones and tissues are still growing, current treatments for facial cancers in children can lead to […]

What do you want to do when you grow up?

When you grow up

For most children when asked, ‘What do you want to do when you grow up?’, the list of possibilities is endless. For children diagnosed with cancer, their aspirations are no less great and why should they be? This is the question Friends of Rosie posed to the children attending this year’s Ward 84 summer party. […]

Research grant applications now open

Research grant applications

Thanks to our wonderful supporters and fundraisers, we are now able to invite new research grant applications for 2019. We invite academic and hospital-based research staff in the North West to apply for  “pump priming” childhood cancer research grants. We are particularly interested to receive applications for projects on solid tumours. The aim of our […]

Hundreds raised thanks to Altrincham FC

Altrincham FC

Huge thanks to Altrincham FC and all your supporters and away fans for donating a total of £334.24 during the home game on Saturday 19th January. Congratulations also on your 1-0 win against Southport. We were made to feel very welcome by the club and supporters and are very grateful for the opportunity to be […]

Positive preliminary results for brain tumour project

Scientific Advisory Board

For the past 18 months, Friends of Rosie has funded a cutting-edge research project to improve treatment options for children with incurable brain tumours. As it moves into its final research phase, we can share some of the positive preliminary results in using immunotherapy to shrink or destroy brain tumours in children. The Friends of […]

Christmas jumper day

Christmas jumper day

Support children’s cancer research this Christmas by hosting your own Christmas jumper day. Whether at work, school, college or a local community group, simply don your best festive jumper and donate to Friends of Rosie. Download your Christmas jumper poster here to advertise your event. Details of how to donate the money raised can be […]

Why you should donate this Christmas

donate this Christmas

Donating to charity is proven to make you feel good and we all need a feel-good vibe in our lives! Here are five reasons why you should donate this Christmas: Donating is a major mood-booster. Research has identified a link between donating to charity and increased activity in the area of the brain that registers […]

Daniel’s story

5k everyday

Hi I’m Daniel. I am now 33 years old and was diagnosed with Acute Lymphoblastic Leukaemia (ALL) when I was three years old in December 1989. Being so young at the time, I don’t really have many memories of that period of my life. I just remember being in hospital a lot around the age […]

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Nancy Dykes

Nancy Dykes

Nancy, 11, was diagnosed with rhabdomyosarcoma when she was just 2 years old. She was treated with Proton Beam Therapy (PBT) in Germany but unfortunately relapsed less than a year later. The family were then sent to Germany for a second round of PBT. Although treatment helped to cure Nancy’s cancer, she has been left with lots of lasting effects which will require ongoing treatment throughout her life. Here Nancy and her mum, Antonia, share their story in the hope it will help others, raise awareness, and raise more money for children’s cancer research.

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Prof John Hickman

Prof John Hickman

Why I am a Trustee of CCRF
 
I am a relative of the Larkin family and knew Rosie Larkin ( Friends of Rosie, now CCRF) when she had and then died of neuroblastoma, aged six. At that time, I was a scientist and professor at Manchester University, actively working on the problem of why some cancers do not die despite intensive and toxic therapies.  Seeing Rosie during her unsuccessful therapy and then attending her funeral, besides being emotional, drove me to double down on my own research as well as to support the Charity as best I could as a cancer researcher. I spent over a decade as the Chairman of the Scientific Advisory Board of the CCRF, when the Board moulded policies to ensure that funds raised for research into childhood cancers were distributed only to clinicians and researchers who had the brightest ideas that could impact of cancer medicine for children.
 
My role on the Board
 
As a Trustee,  I hope that my many decades of experience in cancer research and medicine can help the CCRF determine where best the funds that are raised can be invested in cutting edge research and medicine. I am also keen that the CCRF brings together UK and international experts in science and cancer medicine to brainstorm on how best to advance the treatment of childhood cancers.
 
My Background
 
I was a Professor of Pharmacology at Manchester University, working on drug resistance in cancer. I then moved to Paris, where I still live, to head cancer drug discovery at a French pharmaceutical company (Servier). I then headed an EU consortium for six years that brought together researchers from the pharmaceutical industry, universities and biotechnology companies, from all over Europe and the UK, to improve cancer drug discovery. I continue to be active in cancer health policy, publishing in the medical literature.
Katrina

Katrina London

Why I am a Trustee of CCRF

I have spent my professional career representing individuals and families affected by the devastating asbestos-related cancer, mesothelioma, which has no cure and for which there are only a limited number of palliative treatments available on the NHS.

I joined CCRF because I wanted to bring my understanding of the need to raise awareness of less well known cancers and passion for the need to secure improved funding for research to children facing a cancer diagnosis.

My role on the Board

I am responsible for oversight of our collaboration agreements with other charities to co-fund research into cures and treatments for childhood cancers. I also manage our challenge events and help with community fundraising. 

My Background

I am a Senior Associate at Irwin Mitchell LLP and specialise in Asbestos Disease Litigation, acting on behalf of victims of asbestos related diseases and their families.  Over the years, I have undertaken a number of fundraising challenges to raise money for cancer research, including a 1000 mile cycle ride from Glasgow to Southampton.   

Carla

Carla Nuttall

Why I’m a Trustee of CCRF
 
I became a trustee of the Children’s Cancer Research Fund because I believe every child deserves the chance to grow up healthy and with everything to look forward to in life. Like many people, I’ve seen the impact cancer can have on families and I wanted to do something that could make a real difference. This started through my work as an ambassador for Cyclists Fighting Cancer, which supported young people and their families in finding strength, confidence, and joy through movement.
 
That experience shaped my understanding of the challenges families face and the importance of community-led support – but crucially, the clear need for that to go hand-in-hand with targeted research and long-term solutions.
 
This is why I’m so passionate about the work CCRF does and proud to contribute to a cause that gives children and their families, the greatest chance of living a life without limits.
 
My Role on the Board
 
I support CCRF’s mission by bringing my experience in brand, marketing, and communications to the board. My focus is on helping CCRF tell its story in a way that resonates with people – whether that’s families, researchers, donors, or the wider public. I work alongside an incredible team to strengthen CCRF’s voice, build trust, and grow awareness so that more children and families can benefit from the breakthroughs we’re helping to fund.
 
My Background
 
I’m the Executive Director of Corporate Affairs and Marketing for The Growth Company, a social enterprise dedicated to helping people, businesses, and places to thrive through its market-leading insight, employment, skills and business support.
My passion is to help the organisations I work with to communicate with clarity, purpose, and integrity. That’s why I’ve spent my career in strategic communications supporting organisations that want to make a positive difference – CCRF could not fit my sense of purpose any better.