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Could a blood test diagnose Ewing Sarcoma?

blood test

Friends of Rosie has joined forces with another like-minded charity, Megan’s Rose of Hope, to fund research into the use of a revolutionary new blood test to diagnose Ewing Sarcoma, a rare type of bone cancer. In 1 in 4 children or young people with Ewing Sarcoma there is little chance of survival because the […]

Become a Parent Trustee

parent trustee

Would you like to become a Parent Trustee and make a difference in early-stage children’s cancer research? When 5-year-old Rosie was diagnosed with cancer her parents were told there was no cure. When she died, they asked what they could do to prevent such tragedies. The doctors told her parents the only answer was research. […]

A challenging but positive CCAM

childhood cancer awareness month

2022 was a challenging but positive Childhood Cancer Awareness Month (CCAM). The sad death of Her Majesty Queen Elizabeth II meant that many charities, like us, felt the need to pause some of our campaigning as a mark of respect during a period of national mourning. The news has also been dominated by the energy […]

Annual newsletter out now!

Newsletter out now

Every year we issue a printed annual newsletter to help keep all our supporters updated on charity activities. It’s really important to us that you know where your donations go and how we spend every penny. This annual newsletter gives you a summary round-up in one place. Click here to read the electronic version of […]

Brownie superheroes raise £250!

Brownie superheroes

Eight year old Evie’s superhero art fundraiser has raised a fantastic £250 for children’s cancer research thanks to her group of Brownie superheroes. There was a total of 18 entries from Evie’s Brownie group, the 5th Debdale (St George’s) Brownies, with each design depicting a superhero. Evie drew the competition and announced the winners last […]

Brownie superhero fundraiser

Brownie superhero fundraiser

We’re sending a huge thank you to eight year old Evie and her Brownie group for supporting Friends of Rosie with their Brownie superhero fundraiser. Evie has set up an art fundraiser asking the other Brownies to design their own child superhero. She is supporting Friends of Rosie is recognition of our Young Ambassador, Ruth […]

Thanks to Manchester United Supporters Club

manchester united

A huge thank you to the Middleton Manchester United Supporters Club for their kind and generous support. We recently received a much needed donation of £500 from the club to support children’s cancer research projects. The club chose Friends of Rosie as one of their members lost their grandchild earlier this year to leukaemia at […]

Deans Court Chambers team run for Rosie

Deans Court Chambers

A team of members and staff from leading Manchester-based barristers’ Chambers, Deans Court Chambers, ran this year’s Manchester 10k to help raise money for Friends of Rosie, a local children’s cancer research charity.

Amelia’s communion fundraiser

Amelia Greig

Eight year old, Amelia Stimpson, and her family and friends are fundraising for childhood cancer research at Amelia’s upcoming holy communion. Following the communion, Amelia’s family and friends are hosting a fundraising party in memory of five year old, Gracie McCall. Gracie lost her battle with a rare brain tumour two years ago. Gracie and […]

Gracie McCall’s story

Gracie McCall

Gracie McCall’s mum, Katie, shares Gracie’s story with us to highlight the vital need for more childhood cancer research, particularly for very rare types of cancer. “In January 2014, Gracie was diagnosed with a very rare and very aggressive brain tumour called Atypical Teratoid Rhabdoid Tumour (AT/RT). She was just two and a half years […]

Nancy Dykes

Nancy Dykes

Nancy, 11, was diagnosed with rhabdomyosarcoma when she was just 2 years old. She was treated with Proton Beam Therapy (PBT) in Germany but unfortunately relapsed less than a year later. The family were then sent to Germany for a second round of PBT. Although treatment helped to cure Nancy’s cancer, she has been left with lots of lasting effects which will require ongoing treatment throughout her life. Here Nancy and her mum, Antonia, share their story in the hope it will help others, raise awareness, and raise more money for children’s cancer research.

Prof John Hickman

Prof John Hickman

Why I am a Trustee of CCRF
 
I am a relative of the Larkin family and knew Rosie Larkin ( Friends of Rosie, now CCRF) when she had and then died of neuroblastoma, aged six. At that time, I was a scientist and professor at Manchester University, actively working on the problem of why some cancers do not die despite intensive and toxic therapies.  Seeing Rosie during her unsuccessful therapy and then attending her funeral, besides being emotional, drove me to double down on my own research as well as to support the Charity as best I could as a cancer researcher. I spent over a decade as the Chairman of the Scientific Advisory Board of the CCRF, when the Board moulded policies to ensure that funds raised for research into childhood cancers were distributed only to clinicians and researchers who had the brightest ideas that could impact of cancer medicine for children.
 
My role on the Board
 
As a Trustee,  I hope that my many decades of experience in cancer research and medicine can help the CCRF determine where best the funds that are raised can be invested in cutting edge research and medicine. I am also keen that the CCRF brings together UK and international experts in science and cancer medicine to brainstorm on how best to advance the treatment of childhood cancers.
 
My Background
 
I was a Professor of Pharmacology at Manchester University, working on drug resistance in cancer. I then moved to Paris, where I still live, to head cancer drug discovery at a French pharmaceutical company (Servier). I then headed an EU consortium for six years that brought together researchers from the pharmaceutical industry, universities and biotechnology companies, from all over Europe and the UK, to improve cancer drug discovery. I continue to be active in cancer health policy, publishing in the medical literature.
Katrina

Katrina London

Why I am a Trustee of CCRF

I have spent my professional career representing individuals and families affected by the devastating asbestos-related cancer, mesothelioma, which has no cure and for which there are only a limited number of palliative treatments available on the NHS.

I joined CCRF because I wanted to bring my understanding of the need to raise awareness of less well known cancers and passion for the need to secure improved funding for research to children facing a cancer diagnosis.

My role on the Board

I am responsible for oversight of our collaboration agreements with other charities to co-fund research into cures and treatments for childhood cancers. I also manage our challenge events and help with community fundraising. 

My Background

I am a Senior Associate at Irwin Mitchell LLP and specialise in Asbestos Disease Litigation, acting on behalf of victims of asbestos related diseases and their families.  Over the years, I have undertaken a number of fundraising challenges to raise money for cancer research, including a 1000 mile cycle ride from Glasgow to Southampton.   

Carla

Carla Nuttall

Why I’m a Trustee of CCRF
 
I became a trustee of the Children’s Cancer Research Fund because I believe every child deserves the chance to grow up healthy and with everything to look forward to in life. Like many people, I’ve seen the impact cancer can have on families and I wanted to do something that could make a real difference. This started through my work as an ambassador for Cyclists Fighting Cancer, which supported young people and their families in finding strength, confidence, and joy through movement.
 
That experience shaped my understanding of the challenges families face and the importance of community-led support – but crucially, the clear need for that to go hand-in-hand with targeted research and long-term solutions.
 
This is why I’m so passionate about the work CCRF does and proud to contribute to a cause that gives children and their families, the greatest chance of living a life without limits.
 
My Role on the Board
 
I support CCRF’s mission by bringing my experience in brand, marketing, and communications to the board. My focus is on helping CCRF tell its story in a way that resonates with people – whether that’s families, researchers, donors, or the wider public. I work alongside an incredible team to strengthen CCRF’s voice, build trust, and grow awareness so that more children and families can benefit from the breakthroughs we’re helping to fund.
 
My Background
 
I’m the Executive Director of Corporate Affairs and Marketing for The Growth Company, a social enterprise dedicated to helping people, businesses, and places to thrive through its market-leading insight, employment, skills and business support.
My passion is to help the organisations I work with to communicate with clarity, purpose, and integrity. That’s why I’ve spent my career in strategic communications supporting organisations that want to make a positive difference – CCRF could not fit my sense of purpose any better.